Archive for October, 2008

Run4Joe success

October 28, 2008

We’ve just received the attached photos which moved me to tears. Our dear friends from our former triathlon club in the UK (Whiteoak Tri) have gone to incredible lengths over the past few months to raise money and awareness for the Myelin Project UK via Run4Joe.  They completed the Beachy Head Cross Country Marathon on […]

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2 years young

October 15, 2008

I watched Joseph drift off to sleep tonight and the usual thought ran through my mind – he looks so perfect.  I sometimes don’t want to or can’t believe that Leukodystrophy and the heartache that it brings is part of our everyday lives. Joseph is now 2 years young and is still not rolling, sitting […]

Posted in Joseph's Life 1 Comment »

1,500 euros raised in 4 miles

October 4, 2008

The eight Irish women that I wrote about in our last post have done a truly magnificent job by completing the Evening Echo Ladies Cork City mini marathon and raising 1,500 euros for the European Leukodystrophy Association. Thank you so much to Dee, Ger, Sharon, Maria, Deirdre, Kathy, Sinead, and Aideen, all of whom finished […]

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