Saturday was very special. Joey went to the children’s Christmas party at the French presidential palace in Paris where he met the French President; Monsieur Francois Hollande and his partner; Valerie Trierweiler.
Joey was invited to the palace along with some of his ELA buddies. In total, there were 600 children invited and the palace was turned into a magical Christmas wonderland. We arrived by train and then taken by bus with a police escort through Paris to the entrance of the presidential gates. It felt like we had won a golden ticket for Willie Wonka’s Chocolate Factory! The colours, the lights, the sweets, even giant Oompa Loompa’s entertained the children, along with lots of singers, dancers, comedians and musicians. Santa made a surprise visit too and he brought Joey an early Christmas present.
Magical moments like Saturday temporarily distract us from the daily reality of life with very ill children. Some of Joey’s buddies who have more aggressive forms of leukodystrophy may not have another Christmas. We made the most of this exceptional day. A day full of emotion for lots of reasons.