Matt insists that 2011 will be a better year. So far, so good. Matt started his new job in January, Joey’s new cousin; Benjamin Matthew Brooker was born on the 12 February, and Joey will have another new cousin in Ireland in mid June. At the end of February, we spent a lovely week in Ireland [...]
Love and special thoughts for this Christmas to all of you….. our dear friends and family who are near, far or no longer on this earth but with us in our hearts. Hope Santa visits – his reindeers and sledge are well equipped for the snow so he has no excuses.
Thank you Zinidine Zidane, all the team at ELA and the volunteers and staff at Disneyland for a magical day at Eurodisney in Paris, on Saturday 20th November 2010. 800 ELA families were united in putting aside their struggles for a few hours and instead enjoy the sunshine, camaraderie and sparkle of Disneyland. We were guided by [...]
On Saturday 13th November 2010, Joseph will appear on National French TV with some celebrities who are giving their time to help with a national fundraising exercise for ELA. For friends who are in France, the show is called: ‘Les stars se depassent pour ELA’ and will be broadcast on TF1 at 20h45 local time. [...]
Happy fourth birthday Joey, our darling angel and hero.
Joey had his first day at school this week. Well, school in a loose sense, but an exciting and big step for him and us nonetheless. He has started in a ‘social, medical and educational’ centre called Ninon Vallin. He will go there for two days a week and is one of seven children in [...]
Joseph’s lovely Granny, Lynne, died a few weeks ago (23 April) and today we should be celebrating her 68th birthday. The past few months have been emotional and stressful and a whirlwind of journeys to the UK to be with Lynne and the rest of Matt’s family. Throughout all the shock and sadness we’ve felt [...]
Apologies for the long unintended silence from us. The months have whizzed by and we haven’t updated you on Joey’s progress in ages. Life, thankfully, has been good to us in recent months. Once Joseph was fully recovered from his gastrostomy operation in February, we decided that we should try and go away together for [...]
Just a very quick post to tell you all that Mark and Dave have completed the Cape Epic prologue in a great time and are in good shape for the rest of the race. Mark has been sending me updates via email so he must have internet access. The race can’t be that hard if [...]
Tomorrow is the big day for Mark and Dave – they will take part in the first stage of the World’s toughest mountain bike race: The Cape Epic. We wish them the best of luck. They’re going to need it – this really is a challenge to end all challenges. For those of you not [...]