I am pleased to announce Epic4Joe. Our friends Mark Lawn and Dave Featherstone, will race the Cape Epic Mountain Bike Race in South Africa on 21 – 28 March. Their team is called Epic4Joe and they’re raising money for The Myelin Project UK. This event is my ultimate dream and I am secretly very jealous, [...]

Before we head away to spend Christmas and the New Year with family in the UK and Ireland, I just wanted to write an update on Joseph as we haven’t done one in ages and also to wish you all a very happy Christmas and New Year. Joseph is in better form after a fairly [...]

On Monday 27 October 2008, Paul Hickey and Ciaran McNally, ran the Dublin City Marathon (26.2 miles) for ELA via Tri4Joe.  Paul posted an impressively speedy 2 hours 45 minutes time and Ciaran finished in a very respectable time of just over 4 hours.  We are so pleased that Paul and Ciaran have chosen to [...]

I watched Joseph drift off to sleep tonight and the usual thought ran through my mind – he looks so perfect.  I sometimes don’t want to or can’t believe that Leukodystrophy and the heartache that it brings is part of our everyday lives. Joseph is now 2 years young and is still not rolling, sitting [...]

The eight Irish women that I wrote about in our last post have done a truly magnificent job by completing the Evening Echo Ladies Cork City mini marathon and raising 1,500 euros for the European Leukodystrophy Association. Thank you so much to Dee, Ger, Sharon, Maria, Deirdre, Kathy, Sinead, and Aideen, all of whom finished [...]

Eight Irish women, including my sister, Sharon, and my sister-in-law, Deirdre, will line up this weekend (Sunday 28 September) and Run4Joe to raise money and awareness for the European Leukodystrophy Association (ELA) at the Cork Ladies Mini Marathon.  The mini marathon consists of a 4 mile run through Cork City. A big thank you to [...]

Hot on the heels of the previous post about The Myelin Project UK registering with JustGiving.com, I am pleased to also announce Run4Joe. Alex Tyrrell, a close friend of ours who lives in the UK and who is a member of our old triathlon club, is going to compete in the Beachy Head Marathon which [...]

I am very pleased to announce that The Myelin Project UK has recently registered with JustGiving.com. This is really exciting because it means that it is much easier for people based in the UK – perhaps you – to organize their own fundraising activities on behalf of The Myelin Project UK. So if you are [...]

Well the title says it all! Last week Colette and Joseph spent the week in Ireland with her family.  When they came back Colette had a fistful of cheques representing the last of the money that we have raised as a result of Tri4Joe.  This means that we are now, finally, able to post a [...]

Mission complete.  Matt did himself and us proud today when he crossed that finish line at around 5.30pm this evening.  His aim was to complete and finish the 3.8km swim, 180km bike and 42km run as a thank you to everyone who has supported and donated to tri4joe over the past few weeks.  It was [...]