General

Wishing you a peaceful, restful and happy Christmas

Posted by on December 21, 2010 at 2:23 pm

Love and special thoughts for this Christmas to all of you….. our dear friends and family who are near, far or no longer on this earth but with us in our hearts. Hope Santa visits – his reindeers and sledge are well equipped for the snow so he has no excuses.

A day of magic

Posted by on November 22, 2010 at 6:29 pm

Thank you Zinidine Zidane, all the team at ELA and the volunteers and staff at Disneyland for a magical day at Eurodisney in Paris, on Saturday 20th November 2010. 800 ELA families were united in putting aside their struggles for a few hours and instead enjoy the sunshine, camaraderie and sparkle of Disneyland.  We were guided by […]

Joey amongst the stars

Posted by on November 10, 2010 at 6:34 pm

On Saturday 13th November 2010, Joseph will appear on National French TV with some celebrities who are giving their time to help with a national fundraising exercise for ELA. For friends who are in France, the show is called: ‘Les stars se depassent pour ELA’ and will be broadcast on TF1 at 20h45 local time. […]

Ed’s Tri4Joe: Race Day!

Posted by on June 27, 2010 at 1:26 pm

The big day has arrived for Ed – today is Ironman France in Nice. We met Ed earlier this week and he was look very fit and ready for the race today. We know he can do it and we know that he’s going to sail round the course! We’re keeping our fingers and toes […]

Family Inc.

Posted by on June 6, 2010 at 11:36 pm

Before Joseph arrived into our lives, Colette and I used to spend most of our lives riding our bikes together. So much so in fact, that Colette got rather good at it and competed internationally, including the Cycling World Championships in 2003 and 2004. It was because of cycling that we fell in love with […]

Ed’s Tri4Joe: 4 weeks to go

Posted by on June 6, 2010 at 10:23 pm

Ed’s training is going well (mostly) and finally he has been blessed with a decent run of good weather. Not only will this benefit his training, but it will also give him a chance to tan his legs a bit, which is a highly important attribute of any triathlete! Swimmers must be the most dedicated […]

Ed’s Tri4Joe: 5 weeks to go

Posted by on May 30, 2010 at 3:36 pm

Introduction On 27 June 2010, our super-hero friend Ed Nicoll will compete in Ironman Nice (3.8km swim, 180km bike ride and a 42km run) and raise money for the European Leukodystrophy Association (ELA). This will be Ed’s first Ironman, but he is not by any means a stranger to endurance sports: Ed has already competed […]

ELA Football Tournament

Posted by on May 30, 2010 at 2:54 pm

Raises 4000 Euros for ELA Last weekend we were invited once again to the The ELA Cup organized by our local football team AS Gresivaudan (ASG) at Pontcharra. This year’s edition of the tournament took place in perfect conditions and saw 16 under-13 teams from all over France and as far afield as Germany demonstrating […]

To better times ahead

Posted by on May 16, 2010 at 1:01 pm

Joseph’s lovely Granny, Lynne, died a few weeks ago (23 April) and today we should be celebrating her 68th birthday. The past few months have been emotional and stressful and a whirlwind of journeys to the UK to be with Lynne and the rest of Matt’s family. Throughout all the shock and sadness we’ve felt […]

Happy New Year 2010!

Posted by on January 10, 2010 at 11:16 pm

Joseph had a great Christmas and New Year and was utterly spoiled by his grand parents and auntie and uncle. We think this year was the first year that Joey started to understand and get excited with presents. Like most children of his age (perhaps a bit younger) he seemed more interested in the wrapping […]