General

We’re not alone

Posted by on November 10, 2008 at 1:30 am

Last weekend we went to Center Parcs in Sologne (near Orleans, a little south of Paris). The weekend, which was organized by ELA, was intended to bring together many of the families in France who are affected by leukodystrophy. We were a little apprehensive at first, which I think is natural for newcomers since we [...]

Running for Joe in the Dublin City Marathon

Posted by on November 4, 2008 at 3:59 pm

On Monday 27 October 2008, Paul Hickey and Ciaran McNally, ran the Dublin City Marathon (26.2 miles) for ELA via Tri4Joe.  Paul posted an impressively speedy 2 hours 45 minutes time and Ciaran finished in a very respectable time of just over 4 hours.  We are so pleased that Paul and Ciaran have chosen to [...]

Run4Joe success

Posted by on October 28, 2008 at 3:56 pm

We’ve just received the attached photos which moved me to tears. Our dear friends from our former triathlon club in the UK (Whiteoak Tri) have gone to incredible lengths over the past few months to raise money and awareness for the Myelin Project UK via Run4Joe.  They completed the Beachy Head Cross Country Marathon on [...]

1,500 euros raised in 4 miles

Posted by on October 4, 2008 at 10:16 pm

The eight Irish women that I wrote about in our last post have done a truly magnificent job by completing the Evening Echo Ladies Cork City mini marathon and raising 1,500 euros for the European Leukodystrophy Association. Thank you so much to Dee, Ger, Sharon, Maria, Deirdre, Kathy, Sinead, and Aideen, all of whom finished [...]

Run4Joe

Posted by on September 24, 2008 at 11:53 pm

Hot on the heels of the previous post about The Myelin Project UK registering with JustGiving.com, I am pleased to also announce Run4Joe. Alex Tyrrell, a close friend of ours who lives in the UK and who is a member of our old triathlon club, is going to compete in the Beachy Head Marathon which [...]

The Myelin Project UK is now on JustGiving.com

Posted by on September 24, 2008 at 11:14 pm

I am very pleased to announce that The Myelin Project UK has recently registered with JustGiving.com. This is really exciting because it means that it is much easier for people based in the UK – perhaps you – to organize their own fundraising activities on behalf of The Myelin Project UK. So if you are [...]

30,000 Euros!

Posted by on August 31, 2008 at 6:03 pm

Well the title says it all! Last week Colette and Joseph spent the week in Ireland with her family.  When they came back Colette had a fistful of cheques representing the last of the money that we have raised as a result of Tri4Joe.  This means that we are now, finally, able to post a [...]

Keep the blog alive!

Posted by on July 20, 2008 at 11:14 pm

Well it’s a week today since the Ironman.  It already seems like an age ago.  I’ve recovered surprisingly quickly except for my back which is still quite sore (although I made it worse by riding my bike to and from work on Thursday!  Silly impatient me!). Joseph has been on egg-shells all week – we [...]

Home again

Posted by on July 16, 2008 at 4:29 pm

After spending a day looking around Zurich we came home yesterday.  I’ve spent the morning reading the last two posts that Colette wrote and all the very kind comments and emails that we’ve received.  Thank you everyone for all your support. Joseph coped well with the journey back but is feeling a bit tired and [...]

Job done

Posted by on July 13, 2008 at 11:37 pm

Mission complete.  Matt did himself and us proud today when he crossed that finish line at around 5.30pm this evening.  His aim was to complete and finish the 3.8km swim, 180km bike and 42km run as a thank you to everyone who has supported and donated to tri4joe over the past few weeks.  It was [...]